Tuesday, March 22, 2005
This is Simons father speaking
As Simon got a little dip in his illness last week - he was crying more, got stiffer again and was a bad kid - I grounded him for a week. As a result his doctor adjusted his dose of medicine. It takes a couple of day to take effect, but now he is better again.
As Simon grows, he also grows out of the recommended dose. He is now almost 4.5 kilos and about 65 cm (I think). He is also a little better in communicating. That is a nice feature! And even if he is a little late in his development, cause of his birth, the respond so far is pretty good. A little stiff still, but better. He is even capable of lifting his own wieght. Something that I discovered when he grabbed the safety bar in his car chair. That is even more than I manage to do... not a good sign.
Anyway, I finally want to thank all relatives from around the world for your thoughts and gifts. We are really thankfull for those.
PS There are new baby pictures in Simons album.
Posted at 07:45 am by
z2jois
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Monday, March 07, 2005
I am much bigger now. You can see that in my new video in the left side section.
This week I will do some examines in order to adjust my medicine. I have grown so I need to adjust it. It is a good thing. Thank you for all wonderful messages. You are beatiful!
Simon G
Posted at 05:53 am by
z2jois
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Tuesday, February 15, 2005
My dear fellow citizens, I am happy to announce that I am now halfway to home. Men and my parents are living in a home like environment called Kristallen. This looks like it should be a piece of cake to escape from. Just play normal for a couple of weeks (eat, shit, sleep) and we will be home free.
http://www.habilitering.nu/gn/opencms/web/HAB/habiliteringens_utbud/Spec_verksamheter_for_barn/kristallen.html
I am on a new medication at the moment. It makes me pretty tired, but I could use the rest. My body certainly loves it. If I sleep more I get more strength later.
I made som smell step in progress to. Now I can smile in my sleep.
Posted at 04:20 am by
z2jois
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Tuesday, February 08, 2005
Check my album.
Posted at 08:58 am by
z2jois
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Monday, February 07, 2005
Today my father went to see a new kind of living for me. It is a house where specialists for babies like me can help with all kinds of therapies and massages. Massages all the way from India baby, and for the paretnst to. Feng shui in every corner. Also it feels more like an ordinary home so my folks dont have to be mad at the hospital anymore. It is one step to freedom. So maybe Ill be home like permanent to spring. But daddy says that we can go home even if stay at that place. It is close to SÖS. Kristallen is the name, and yes, people can come and visit me. Just be sure to call in forehand. Maybe I can be there at the end of the week.
I know there will be new photos. I had a little party when I celebrated my first month. Today Im one month and one day old. Hey, its better than the small guys that are nothing.
/Take care - Simon G Lindell Thorslund
Posted at 02:16 pm by
z2jois
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Monday, January 31, 2005
This weeken was my first time outside a hospital. My parents tooked me for a ride to my grandparents. You should have seen my face the first time I felt cold air in the face. The first time I heard a rel bird singing. The first sunbeam in my face.
Maybe that was a little to much to handle. I screamed like a pig the whole day and half the night after that. The doctors can only say Im a sensitive child.
But sunday was ok, I slept and slept again.
As the doctors told me, this is a journey where it will be two steps forward and one backwards. For quite some time. I still dont know when to come home. But Im getting there, in small steps.
Thank you all people for your gratitudes. It really means a lot to us. To the whole family.
My father is writing his blog on mondays, so I guess I will update that too, unless something more drastical happenes. Ok.
Over and out./Simon G Lindell Thorslund
Posted at 05:07 am by
z2jois
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Tuesday, January 25, 2005
Last week I learned to cry. I also tought my parents the meaning of humblenes and tolerance. Still I have to spend then night with tree different nurses every night. A habit that is quite nice. However I feel best and most comfortable with my parents during the days. Soon I will be able to sleep with them instead. I just have to learn to eat by myself.
The doctor tells me that my tics is just a result of tension, and is not related to the something neurological. So we have further one less problem. Thank you. The rest of my life is eating, pooping, sleeping and crying. Things that Im supposed to do. If only I could get rid of those tensions soon I promise to be a good baby.
For my fans there are new portraits in my gallery. See you soon!
/Simon G Lindell Thorslund
Posted at 10:53 am by
z2jois
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Saturday, January 22, 2005
Now you can see my first video. Just click on the link in the left margin.
Posted at 05:49 am by
z2jois
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Monday, January 17, 2005
Hi again. I can breath on my own now. A couple of days ago I sometimes forgot. But now I dont. My dad told me that if I didnt I had to share a oxygen tent with a guy called Wacko Jacko. So now I dont need oxygen anymore. But I do have som annoying ticks in my arms. Tomorrow I will go to my first gym with a special trainer. Maybe she can teach me to do it right. Please hope that I will. Ok, I will keep all my fans updated. See you soon again.
/Simon G Lindell Thorslund
Posted at 08:01 am by
z2jois
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Friday, January 14, 2005
My first week on the planet.
Hej, my name is Simon and Im one week old. 4.2 kg st the arrival.
I really sholdn´t be here. Anyway I was dead at the arrival. First dead, then awake. I guess that makes me a zoombie then? They really dont know what happened during my homecoming. First some doctor told my parents I had to much to drink (thanks dad!). I also had pooed in the water. Big mistake. Anyway, my heart stopped. And when the heart stops, pretty much everything else stops too. Then you die and your father faints.
Ok, so this is a shout out to all you wonderful guys who kept thinking of me and prayed or whatever some of you did for me. Thank you! Im pretty sure the specialists are sure about what they did and that nobody could have done it better. So far. But Im alive and today I tooked my first breath by myself. Belive it or not, it worked. I am pretty sure all your hopes and thoughts made me stronger. And even if it didnt, it made my parents stronger. So once again, Thank you folks.
However, as this was not enough, I still have to stay at the hopsital for observation for a while. You see, when the body is lack of oxygen for a long time, like mine was, a lot of things in the body tries to protect you. Some stuff even broke. Like my lungs. The kidney tooked the worst shot, but the lack of oxygen made it all the way to brain. It is no bleeding, but it may be some damage done, or it may not. Lets just keep hoping for the later, thanks.
So far I am moving and doing everything that a baby shall. Except screaming. My throat is a bit sour after having all the cables in it for a week. But that will be ok soon. My parents are problarly the only ones in the world that longs for some baby screams... All my other organs are repaired now. Thank you to all the doctors and wonderful nurses who tooked care of me. Love you guys. So, as soon as Im home I gonna have a big baby party. I will let you know.
Thank you all/Simon G Lindell Thorslund
PS You can see how I look in my special album to the left...
Posted at 08:37 am by
z2jois
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